Sociocultural Influences on African Americans’ Representations of Type 2 Diabetes: A Qualitative Study

February 1, 2018

Abstract

Objective

Illness representations, known as patients’ beliefs and expectations about an illness, may be influenced by cultural beliefs and personal experiences. This study explored African Americans’ perceptions of the sociocultural factors that influence their representations of diabetes.

Design

Six semi-structured focus groups.

Setting

Private space at a convenient site.

Participants

Forty African Americans, aged 45-60 years with type 2 diabetes for at least one year prior.

Results

Participants perceived that there was a race-mediated effect of how they developed diabetes because of poverty due to past slavery, racial discrimination by health care providers, and the stigma associated with diabetes within the African American community. Participants perceived that poverty influenced African Americans’ unhealthy eating habits, which led to diabetes diagnosis among their ancestors and their development of the disease since it was hereditary. Participants also perceived that there was provider ill intention, ie, providers were purposefully making people sick, and their lack of education on diabetes from providers was done on purpose, as information on diabetes was withheld and not shared due to racial discrimination. Perceived stigma by the community led to African Americans’ avoidance and denial of the disease, and subsequently the development of diabetes.

Conclusions

To enhance disease management for African Americans with diabetes, it is important to focus on the sociocultural context of how African Americans view their world that may be influenced by their knowledge of negative historical circumstances and their current provider relationship, which, in turn, may be reflected in their perceptions of diabetes.

Cited by

This article is cited by 15 publications

  1. Shiyanbola, O. O., Maurer, M., Mott, M., Schwerer, L., Sarkarati, N., Sharp, L. K., & Ward, E. (2022). A feasibility pilot trial of a peer-support educational behavioral intervention to improve diabetes medication adherence in African Americans. Pilot and feasibility studies, 8(1), 240. https://doi.org/10.1186/s40814-022-01198-7
  2. Shiyanbola, O. O., Maurer, M., Schwerer, L., Sarkarati, N., Wen, M. J., Salihu, E. Y., Nordin, J., Xiong, P., Egbujor, U. M., & Williams, S. D. (2022). A Culturally Tailored Diabetes Self-Management Intervention Incorporating Race-Congruent Peer Support to Address Beliefs, Medication Adherence and Diabetes Control in African Americans: A Pilot Feasibility Study. Patient preference and adherence, 16, 2893–2912. https://doi.org/10.2147/PPA.S384974
  3. Wen, M. J., Maurer, M., Schwerer, L., Sarkarati, N., Egbujor, U. M., Nordin, J., Williams, S. D., Liu, Y., & Shiyanbola, O. O. (2022). Perspectives on a Novel Culturally Tailored Diabetes Self-Management Program for African Americans: A Qualitative Study of Healthcare Professionals and Organizational Leaders. International journal of environmental research and public health, 19(19), 12814. https://doi.org/10.3390/ijerph191912814
  4. Love, O., Peter, D., & Julie, S. T. (2022). Systematic review: Perceptions of type 2 diabetes of people of African descent living in high-income countries. Journal of advanced nursing, 78(8), 2277–2289. https://doi.org/10.1111/jan.15266
  5. Ledford, C., Villareal, C., Williams, E. W., Cafferty, L. A., Jackson, J. T., & Seehusen, D. A. (2022). Patient Decision-Making About Self-Disclosure of a Type 2 Diabetes Diagnosis: A Qualitative Study. Diabetes spectrum : a publication of the American Diabetes Association, 35(3), 327–334. https://doi.org/10.2337/ds21-0043